Tuesday, December 4, 2018
Discover. . .: How a Picture Inspired a Novel and Informed a Writ...
Discover. . .: How a Picture Inspired a Novel and Informed a Writ...: MUSE MONDAY Please welcome Ryan Jo Summers to Muse Monday. They say a picture is worth a thousand words, and I do believe it’s tru...
Monday, June 13, 2016
Texas Book Nook: Blog Tour: Upon the Tide by @RyanJoSummers #review...
Texas Book Nook: Blog Tour: Upon the Tide by @RyanJoSummers #review...: Romantic Suspense Date Published: May 18, 2016 Tossed together by happenstance, fleeing for their lives and finding lo...
Tuesday, February 23, 2016
Monday, October 13, 2008
newly prediagnosed with MS, am frustrated with lack of support, resources, help, etc...
Hello. I am newly pre-diagnosed with MS and am feeling very overwhelmed with the whole process. A friend suggested I try this blog to connect with others who are walking, or have walked this path ahead of me. So here goes....
My regular MD can not, nor will not make the full MS diagnosis and so he sent me to a neurologist specialist. This specialist ran some tests, (MRI, EEG, Nerve velosity test) and said I have a classic case of MS, but because the brain MRI was normal he will not give a diagnosis of MS. He was more interested in the epilepsy that was diagnosed in 1999 and is under control. I feel it was a huge waste of time (over 2 months) to deal with this doctor and now am thinking of getting a second opinion to see what else we can do.
Maybe I am wrong but it seems to me we should be ruling out other diseases/issues as well as trying to manage the various symptoms that have completely taken over my life in the last 4 months.
Someone referred me to support groups as a means to cope, except they all require a diagnosis of MS to 'join' or attend. Since all I have is a pre-diagnosis, I don't know if that is adequate. And how does one get a diagnosis when it seems like such a hard thing to actually confirm? I know a normal MRI of the brain does not confirm nor dismiss MS, so how can a specialist say I have a 'classic case' but rule out a concrete diagnosis based purely on the MRI and refuse to go any further? Should there not be more testing and for God's sake--management of symptoms? I don't know--medications or something. A recommendation of some sort. A referral at the very least. Not a shrug and a "I don't know" cavalier attitude.
So now, today, I am considering going to our state's teaching university to see their neuroscience specialists and students. Has anyone had any experiences with going to the state teaching university?
My regular MD can not, nor will not make the full MS diagnosis and so he sent me to a neurologist specialist. This specialist ran some tests, (MRI, EEG, Nerve velosity test) and said I have a classic case of MS, but because the brain MRI was normal he will not give a diagnosis of MS. He was more interested in the epilepsy that was diagnosed in 1999 and is under control. I feel it was a huge waste of time (over 2 months) to deal with this doctor and now am thinking of getting a second opinion to see what else we can do.
Maybe I am wrong but it seems to me we should be ruling out other diseases/issues as well as trying to manage the various symptoms that have completely taken over my life in the last 4 months.
Someone referred me to support groups as a means to cope, except they all require a diagnosis of MS to 'join' or attend. Since all I have is a pre-diagnosis, I don't know if that is adequate. And how does one get a diagnosis when it seems like such a hard thing to actually confirm? I know a normal MRI of the brain does not confirm nor dismiss MS, so how can a specialist say I have a 'classic case' but rule out a concrete diagnosis based purely on the MRI and refuse to go any further? Should there not be more testing and for God's sake--management of symptoms? I don't know--medications or something. A recommendation of some sort. A referral at the very least. Not a shrug and a "I don't know" cavalier attitude.
So now, today, I am considering going to our state's teaching university to see their neuroscience specialists and students. Has anyone had any experiences with going to the state teaching university?
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